[Next Generation Pediatric Asthma Patient Journey]

Digital care pathway for moderate to severe pediatric asthma

NGPAPJ, also known as CliniSpoD [Care Suite – Link – Integrated Network – Innovative – Pediatric – Online monitoring – Data platform], is a digital health innovation that transforms pediatric asthma care into an integrated, data-driven model to improve self-management, outcomes, and care continuity across all healthcare levels.

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Objective

CliniSpoD aims to improve care for children and adolescents with moderate to severe asthma by implementing a Virtual Asthma Clinic. The project investigates whether digital tools—such as mobile apps, smart inhalers, and remote spirometry—can enhance treatment adherence, self-management, and quality of life. It also evaluates if this model can reduce acute healthcare use while maintaining or improving asthma control.

Methodology

CliniSpoD uses a randomized controlled trial to compare traditional asthma care with a Virtual Asthma Clinic, which integrates a mobile app, smart inhaler technology, and remote spirometry. Data from patients and care providers are transfered in FHIR format, mapped to international OMOP and shared through a secure telemonitoring platform. This infrastructure enables continuous monitoring and streamlined communication between general practitioners, hospitals, and families. The study collects clinical and patient-reported outcomes to assess effectiveness, adherence, and satisfaction over a 12-month follow-up.

Impact and future directions

CliniSpoD transforms pediatric asthma care into a digitally supported, integrated model that improves self-management, care continuity, and clinical outcomes. In the future, it will serve as a scalable blueprint for managing other chronic pediatric conditions through interoperable, patient-centered digital health solutions

General info & contact

Keywords (#): Pediatric Asthma, digital care pathway, OMOP

Project coordinator: M.Sc. Margot Baes

RADar project research lead: M.Sc. Lien Demeestere

RADar project researchers: M.Sc. Lien Demeestere, Prof. Dr. Ir. Peter De Jaeger, MD Koenraad Veys

Principal investigator: MD Karin Decaestecker

Timeline: 2025-2026

Status: Starting clinical trail

Publications / presentations:
‘Value (co)-creation in ‘next generation’ care trajectories for children and young people – Optimizing pediatric asthma outcomes through a digitally transformed, interoperable care trajectory SNOMED CT Expo 22-24 OCT 2025, Antwerp

Partners:
Technical: Comunicare Solutions and Corilus/Health Connect
Clinical: SAT and UZ Gent (steering committee: Radboud UMC and Jessa Hospital)
Inder-disciplinary Research: Vlerick Business School, KUL and Ghent University

Funding: FOD datacapability project